As a parent, I believe that children deserve the best childhood possible. That includes the best health treatment, too. Because nothing naughty should take the smile off a child’s face. The beautiful, innocent face of a crystal clear soul… Today, I am sharing the story of a brave little man who is fighting asthma with the help of Alder Hey Children’s Charity. Read Alfie’s story…
On average there are three children with asthma in every classroom in the UK. Many people underestimate how serious the condition is, especially for those who live with severe asthma. Thanks to leading research at Alder Hey, new ways to the help the condition are in the pipeline.
Ten year old Alfred has lived with severe asthma since birth and has recently begun a research study at Alder Hey Children’s Hospital to look at ways to help the condition.
Alfred’s treatment includes permanent steroids, prescribed the highest level of seretide and taking both montelukast and theophylline tablets in addition to the injections which are given as part of the study. There are many triggers that set off his asthma, including all pets, grass being cut and his chest is often tight at night.
Alfred in on the autistic spectrum and in addition to the severe asthma, he has esophagitis – a reflux condition which means he’s on even more tablets and is also tube fed. He is a chatty and clever young man and he loves reading and his dinosaurs!
It’s often hard for Alfred to exercise and socialise the same as his friends and he enjoys spending time indoors as a result. Alfred has a younger brother, Adam who is seven years old. Alfred finds it hard to keep up with the energetic Adam but hopefully, that may change following the study period.
Research at Alder Hey
Mum Sallyanne explains: “When the research team at Alder Hey approached us to participate in a research study, we jumped at the chance as asthma studies are quite rare. They took the time to explain about the drug and what was entailed.
“They told Alfred that the study was taking part in two sections and that at any time he would be able to pull out if he wasn’t comfortable continuing, but he’s already signed up to the second part of the study. Alfred is very clued up on his health.
“Alfred’s asthma stops him from visiting friends and family so as a family we’re hoping the research study could help find a solution to get my son involved and living more.”
Alfred’s asthma scares him and he wants himself to get it looked after better. He’s relaxed making the trips to the NIHR Alder Hey Clinical Research Facility who have carefully planned his visits so he’s able to go to the same clinic room and see familiar members of staff which helps for the appointment.
Alfred said when he filling out the consent forms: “I’m really hoping it helps me, but if it doesn’t it might help other kids.”
Sallyanne adds: “We’re hoping that the study could help towards reducing the amount of steroids and other medications but we’re just thankful that there’s a research study at Alder Hey which could help us to take a step closer in improving my son’s quality of life.”
Every year Alder Hey Children’s Charity cares for over 275,000 patients and their families. It helps children to feel better, to smile again. By developing safer and more effective treatments, Alder Hey’s team gives hope and brings back happiness. They really deserve praise and admiration for their commitment. And I am so happy I have the opportunity to raise awareness about the amazing work they do every day.
We parents need to know that such organisations exist and can help our kids. But also, we all need to support these organisations. It’s about our precious boys and girls. They deserve it.